Tag Archives: pain

Our sick and disabled are being stifled; we should give them space to breathe

The People’s Assembly Against Austerity will be holding a mass demonstration against the government’s austerity measures on Wednesday (July 8) – which is when George Osborne is set to deliver his benefits-bashing ’emergency’ budget.

They have invited Maggie Zolobajluk, who organised the petition in support of my bid to find out how many people have died while claiming sickness/disability benefits, to speak – but not me.

Maggie kindly asked me if I would be able to make it to London and speak instead of her – and I’d love to – but I don’t think it’s possible. The distance is too great, and I can’t justify being away from Mrs Mike – and also the blog, on a day that will affect the way the UK develops for the foreseeable future.

I started drafting out a few words for her to deliver on my behalf – but they turned into a full-blown speech instead. I ended up writing far too much – so, rather than ask her to say it, I’m publishing it here instead.

A previous demonstration, staged by the People's Assembly Against Austerity in 2014.

A previous demonstration, staged by the People’s Assembly Against Austerity in 2014.

I am neither sick, nor disabled – but I choose to side with the sick and disabled against oppression.

It isn’t an entirely altruistic choice. Mrs Mike – as she is known on my blog, Vox Political – has been ill for many years, and we have fought battle after battle with the Department for Work and Pensions over the benefits to which she is entitled.

You’re probably sick of hearing the famous verse by Pastor Martin Niemoller, but he was right. Who’s going to stand up for me, if I don’t stand up for other people first?

Mrs Mike and I are used to winning those battles, and I wonder how much of that success is due to the fact that I am able-bodied. Think about it – if you are battling constant pain, or are a victim of depression, or your condition fluctuates so you simply don’t know if you’ll be able to get out of bed in the morning, or you have any number of the other maladies that may affect the sick or disabled – then the last thing you’ll want to do is argue over tiny details with a gang of suited pedants in Whitehall.

Additionally, these pedants have employed private contractors to make sure they judge the severity of a person’s sickness using information that is wrong.

If you’re sick, or disabled, the pressure can be too much to bear. And not every sick or disabled person has an able-bodied partner like me to take up the slack.

So, inevitably, the worst happens.

Only last weekend I learned about Graham Shawcross, of Manchester. Mr Shawcross had lived – and worked – with Addison’s Disease for 40 years before having to claim sickness benefit. It is a potentially fatal condition whose symptoms include exhaustion, muscle weakness, dizziness, fainting and cramps that can lead to adrenal crisis, which can be fatal. But that isn’t what killed him!

No – Mr Shawcross died of a heart attack in February, after being ruled “fit for work” by the DWP in November last year. He had been preparing to present an appeal against the decision – writing out the details several times a day, and talking about it constantly.

His widow said the stress of having to do this – stress that was created by, and only by, the DWP’s “fit for work” decision – was what killed him.

You should be aware that the DWP says it is “irresponsible to suggest a causal link between the death of an individual and their benefit claim”, and “mortality rates among people with serious health conditions are likely to be higher than those among the general population”. We’ve seen that comment in the newspapers very often over the last few weeks.

It’s a statement that falls flat when the DWP’s own position is that the individual was “fit for work” at the time of his death.

Months after Mr Shawcross passed away – and despite being told this had happened by his widow – the DWP initially invited him to an appeal hearing, and then admitted he was seriously ill and deserved Employment and Support Allowance.

It’s a bit late for that now!

How many other benefit denials have been reversed after the claimant has died?

We don’t know – but it’s the subject of my next Freedom of Information request!

The man responsible for this regime, Iain Duncan Smith, is said to be religious so he should understand me when I say people claiming benefit must feel as though they have been crucified by their physical or mental ill-health. Instead of offering relief, Mr Duncan Smith and his department complete the job with a ‘crown of forms’ that push them into an early grave.

One has to question the morality of a supposed Christian who approves of crucifixion!

But then, it seems even leading members of the Catholic Church to which he belongs have tried pleading with him to alter the fatal direction of his policies – there was an article to that effect in the most recent edition of Catholic newspaper The Tablet.

But government ministers say it is “irresponsible” to claim that the benefit assessment system had anything to do with the death.

I wonder if they’ll say that to Mrs Shawcross, who is adamant that the system is what killed her husband. That would be a conversation worth hearing!

I first became concerned about the number of people who were dying while claiming benefits when the DWP itself revealed that 10,600 deaths had occurred between January and November 2011. Note that the official figures did not include December, which is considered to be a season of increased suicides.

This concern became alarm after I learned that Freedom of Information requests by other individuals, calling for updated figures, had been refused for no reason other than that the 2011 statistics had been part of an ‘ad-hoc’, one-off, release.

So I sent off a request, and asked readers of the blog to support it with requests of their own – to show that it was a matter of wider public concern. Only 23 did, but that was enough for the DWP to refuse me on the grounds that I was being “vexatious” – trying to flood the Department with work.

I’m still not sure how that claim can be justified. It’s the same information – all they had to do was put it together and send it off to the people who wanted it. It seems that creating a mailing list of email addresses is too much for a government department with more than 100,000 employees.

The tribunal that turned down my appeal did express considerable sympathy for my position, and suggested that another FoI request should result in publication of the statistics. So I wrote another one.

I won’t go into the details – it’s enough for you to know that, after several months of fighting with the DWP, I won.

The DWP then chose to take the matter to a tribunal, employing an expensive Treasury barrister to make out the case. It seems that, while Freedom of Information requests cannot cost more than £600 – that’s the legal limit – the government can spend as much of your money as it likes, if it wants to withhold the facts.

That’s when Maggie Zolobajluk started her petition, calling on the tribunal to refuse the appeal.

Now, instead of 23 supporters, my request has 230,000.

So David Cameron told Parliament that the figures will be published. What he didn’t tell Parliament was that they would be homogenised, amortised, Age-Standardised Mortality Rates, that show the deaths as a ratio compared with the death rate amongst the wider population – and he certainly won’t tell anyone how many people have died while claiming sickness and disability benefits since November 2011.

And now the Justice Secretary is trying to make it harder for Freedom of Information requests to succeed. It seems the embarrassment they cause is just too much for the administration that once said it intended to be the most open government ever.

Michael Gove wants to include “thinking time” in the cost of handling FoI requests.

What does that even mean?

Parliament’s Justice Select Committee has already stated that including “thinking time” in FoI costs would introduce an unwelcome variable into the system, which relies on everyone having equal access to the facts. The cost of “thinking time” would depend on the abilities of the civil servant dealing with the request.

Not only that, but we should ask what “thinking” has to do with it in any case. When a request is made under the Freedom of Information Act, the only questions a public authority may ask are whether it has the information and can publish it within the £600 cost limit. Questions about – for example – the motives behind the request are immaterial.

What are we to conclude?

That we have a government that intentionally complicates benefit claims for the sick and disabled.

That people who might live decent and, in many ways, productive lives are having those lives cut short because of goverment policy.

That the government does not want the wider population of the UK to know the true number of deaths.

That the government wants to shut down the Freedom of Information system so inconvenient questions like this can no longer be asked.

In short, that the government wants to smother any attempt to question it.

Too many sick and disabled people have been smothered already.

They need space to breathe.

It is up to the rest of us to help them get it.

Follow me on Twitter: @MidWalesMike

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‘Compassionate’ Conservatism’s three ‘R’s – reading, writing and… rickets?

Painful deformities of the skeleton such as bowed legs: The return of rickets is another sign that the Conservative-led government is regressing Britain to conditions during the primitive Victorian era - or even earlier.

Painful deformities of the skeleton such as bowed legs: The return of rickets is another sign that the Conservative-led government is regressing Britain to conditions during the primitive Victorian era – or even earlier.

David Cameron’s quest to bring the Victorian era back to life in the 21st century reached a new milestone this week when the UK’s chief medical officer formally announced the return of a disease long thought banished from these shores: Rickets.

The announcement brings to fruition a prediction made by Vox Political almost a year ago, when we said: “As a consequence of the rise in poverty, overseen and orchestrated by Mr Cameron and his lieutenant Iain Duncan Smith in the Department for Work and Pensions, the classic poverty-related diseases of rickets and tuberculosis are on the increase.”

According to the NHS Choices website, rickets “is a condition that affects bone development in children. It causes the bones to become soft and malformed, which can lead to bone deformities.

“The most common cause of rickets is a lack of vitamin D and calcium. Vitamin D comes from foods such as oily fish and eggs, and from sunlight on our skin. Vitamin D is essential for a child to form strong and healthy bones.

“Rickets causes the bones to become painful, soft and weak. This leads to deformities of the skeleton, such as bowed legs, curvature of the spine and thickening of the ankles, wrists and knees.”

The disease was thought to have been eradicated in the UK but, in a damning indictment of modern political priorities, chief medical officer Dame Sally Davies has admitted that 40 per cent of our children – that’s two-fifths of all the children in the countrynow have some kind of vitamin D deficiency. Current figures for full-blown rickets are not available.

“The disease was common in Victorian England, but largely disappeared from the Western world in the latter half of the 20th century thanks to vitamin D being added to everyday foods such as margarine and cereal,” stated a report in The Independent. “There has been an observed rise in cases in recent years.”

Can there be any doubt that this rise in cases has been brought about, not just by children sitting at home playing video games rather than going out in the sunlight, as some would have us believe, but because increasing numbers of children are having to make do with increasingly poor food, as Cameron’s policies hammer down on wages and benefits and force working class people and the unemployed to buy cheaper groceries with lower nutritinal value?

The Tory wage-crushing policy has been ignorant in the extreme, according to Dame Sally’s report, as it has created an extra burden on the NHS. Preventative measures “could save the economy billions”.

Dame Sally’s report is entitled ‘Our Children Deserve Better’ – echoing Ed Miliband’s Labour conference mantra, “Britain can do better than this” – and sets out recommendations to tackle urgent problems, such as a universal handout of vitamin supplements to all children under five for vitamin deficiencies, and measures to handle rising child obesity and a lack of effective mental health services.

The neglect created in our health system by more than three decades of neoliberal political rule has had a devastating effect on the nation’s children. According to Dame Sally, while our mortality rate for 0-14 year olds was among the best in Europe during the 1980s, it is now among the worst, with five more children dying every day than in the best-performing country, Sweden.

The highest death rates are in deprived areas – in the northwest, northern cities and some of London’s poorer boroughs, with 21.1 deaths per 100,000 people under 17.

Dame Sally said: “I think this is something, as a country, we should feel profoundly ashamed about – I do.”

Do you think Health Secretary Jeremy Hunt feels ashamed, as he cuts NHS budgets and hives off huge care contracts to profit-making private companies?

No?

Nor should you.

The Vox Political article from December last year also claimed tuberculosis would return, and our report this week on the government’s plan to tackle the phantom problem of “health tourism” seems to demonstrate that it is hell-bent on ensuring that this comes true as well.

Our report earlier this week quoted the chair of the Royal College of GPs, Claire Gerada, who has warned that the cost of administrating the new system could outweigh the savings, while also increasing public health problems such as TB by deterring temporary migrants from seeking treatment when they first fall ill.

In the Bible, Jesus is quoted as saying, “Suffer little children to come unto me, and forbid them not” – meaning he did not want his disciples to stop youngsters from hearing his teachings.

That saying may now be re-worked to fit the philosophy of David Cameron and Jeremy Hunt to read: “Suffer, little children – for you have a Conservative government.”

Are British workers being lured into health insurance that will never pay out?

unum

Working people in the UK could be facing a huge drain on their income, if they join an insurance scheme being offered by a discredited American firm.

It seems that the company behind the hated Work Capability Assessment that has denied disability benefits to thousands of genuinely sick and disabled people, has begun a mass-marketing campaign to encourage able-bodied members of the British public to invest in ‘Income Protection Insurance’, and another scheme known as the ‘Back-up Plan’.

This insurance scheme is only available via the workplace, and it is understood that it has been designed to ensure that the company can resist paying out whenever a claim is made.

In other words, if you join the scheme, you will be giving away your money to a criminal firm. If you become ill or suffer disability in the future, you will not receive a single penny of the insurance money that is due to you.

That is the allegation against Unum Insurance, the American giant that has spent more than two decades advising successive British governments on how to avoid paying sickness and disability benefits to the most deserving claimants in our society.

If you have been contacted in the workplace and offered a chance to take out this insurance, please get in touch. Your experience of this system and insights into its operating procedures could be invaluable.

For those who don’t know the Unum story, you can read some of it here. Unum’s bosses devised their current system to combat the rise of ‘subjective’ illnesses such as ‘chronic pain’, ‘chronic fatigue syndrome’, fibromyalgia, multiple sclerosis, Lyme disease.

The solution devised by the bosses was to reduce the number of successful claims it paid out, by aggressively disputing whether the claimant was ill. So the company skewed its medical examinations to its own favour by questioning illnesses that were “self-reported”, labelling some disabling conditions as “psychological”, and playing up the “subjective” nature of “mental” and “nervous” claims.

The acknowledged basis for this attitude is the Biopsychosocial Model of illness, developed by the psychiatrist George Engel – but it’s a bastardised version, removing the bio- and -social aspects and concentrating on the ‘psycho’. This version of the theory, as used by Unum, has been utterly discredited. It is nonsense, totally disregarding such inconvenient medical procedures as diagnosis and prognosis, or limited life expectancy.

But it proved a great success for Unum – so much so that the UK government sought advice from the company in the early 1990s, when Peter Lilley was running the Department of Social Security. He wanted to reduce the number of disability claimants on his books, and Unum was only too happy to help out. It has been at the heart of disability benefit policy ever since.

We have Unum to thank for the Work Capability Assessment (administered by another private firm, Atos – an IT firm that has no expertise in healthcare, even though that word occasionally appears on its company logo). The recommendations made by Atos representatives, following these assessments, have led to the deaths of at least 73 genuinely ill people every week (according to government figures that are now almost a year old), who have claimed Employment and Support Allowance (formerly Incapacity Benefit). The real figure may be much higher.

The Coalition government considers this to be a great achievement and has now begun expanding the Work Capability Assessment regime to cover claims for Disability Living Allowance, now branded the Personal Independence Payment, with criteria that are much more difficult to achieve.

We can all expect many more deaths to arise from this.

Now, it seems, Unum believes the UK is ripe for bleeding – and that is why it is trying to sell its bogus insurance to working people here.

If you have been contacted, please get in touch.

For further information (with annotations pointing to the really damning evidence) see ‘The Hidden Agenda’ by disability researcher Mo Stewart.

When big business dabbles with welfare; a cautionary tale

unum“Jack Gilligan, who was the Democratic governor of Ohio… said ‘You know there will never be democracy in America when big business can buy both parties and expect a pay-off, whichever one wins. And you know, a touch of that may possibly have spread in this direction.” Tony Benn.

I have been researching the relationship between US insurance giant (and lawbreaker) Unum and successive UK governments – Conservative, New Labour and Coalition – and the minimal research I have managed so far tells me that, if there’s one thing the Labour Party needs to do to ensure its electability in 2015, that thing is the expulsion of Unum and all private insurance firms, their subsidiaries, partner companies, and people who have worked with or for them, from any position of influence. Kick them right out!

Any government that fraternises with these vampires puts corporate profits above the well-being of its citizens. That is clear from what I have read. I want to go into certain aspects in detail, but before that, you deserve to know the details, so I’ve written a little story for you:

Once upon a time, a big insurance company had a little problem. It had been making money hand-over-fist by investing people’s premiums in high-interest portfolios, but interest rates were falling and new kinds of ‘subjective illness’ had arisen, for which medical science was not prepared – ‘chronic pain’, ‘chronic fatigue syndrome’, fibromyalgia, multiple sclerosis, Lyme disease.

The solution devised by the bosses was to reduce the number of successful claims it paid out, by aggressively disputing whether the claimant was ill. So the company skewed its medical examinations to its own favour by questioning illnesses that were “self-reported”, labelling some disabling conditions as “psychological”, and playing up the “subjective” nature of “mental” and “nervous” claims.

“Sickness is temporary,” they said. “Illness is a behaviour – all the things that people say and do that express and communicate their feelings of being unwell. The degree of this behaviour is dependent on the attitudes and beliefs of the individual, as well as the social context and culture. Illness is a personal choice.” In other words: “It’s all in the mind; these people are fit to work”.

Around the same time, a small country had a big problem with people claiming out-of-work benefit because they were ill. This was not a problem because they were lying about being ill – fraud amounted to less than one per cent of claims. Nor was it a problem because too many people were claiming – benefit levels were among the lowest of any countries nearby, and claims were on a par with those other countries.

No, the problem was that the man running the system, whose name was Peter**, wanted to make money out of it.

So he hired the boss of the big insurance company, whose name was John***, and asked him to help out. John said, “We have a great test that you can use! Instead of asking whether someone can do their job, you assess their general capacity to work, with a series of – we call them – descriptors. One could say the person ‘Is unable to cope with changes in the daily routine’, ‘Is frightened to go out alone’. Then the results get passed on to different people – adjudication officers – who judge whether they deserve your benefit. But the clever bit is that these officers aren’t doctors – the customer might be saying they’re sick but medical evidence has nothing to do with what the test is about! We’ll train your adjudicators – for a price. We’ve even got a sexy name for the test: It’s bollocks!”*

Off went Peter to try it and, lo and behold! The rise in claimants came to a halt, as if by magic. But it wasn’t magic. It was bollocks.

Meanwhile, the insurance company was making out like a bandit. Not only was it now at the heart of the small country’s government, it was able to make money from the claimants as well. Before the new rules came into effect, it advertised for customers, saying the new system meant “if you fall ill and have to rely on state incapacity benefit, you could be in serious trouble!”

Before long, the big insurance company found it was even bigger, with a quarter of all its post-tax income being paid by people in the small country.

Meanwhile, back at home, people had started to complain about the big company. It was a big, NASTY company, they said, because it had forced them to accept less when they claimed than their policies offered. The government there found that the big company had relied too much on in-house professionals; had constructed doctors’ or examination reports unfairly, for its own benefit; had failed to evaluate claimants’ conditions in their totality; and had placed an inordinate burden on claimants to justify why they should receive the benefits for which they had paid. Many claims were found to need re-examination.

That did not make a scrap of difference to the people running the sickness benefit system in the small country that had asked for the big nasty insurance company’s help. An election had happened and Peter had been asked to leave, but the new people in charge, Frank**** and Tony*****, were keen to capitalise on what had gone before and transform their welfare system into a new marketplace – a source of revenue, profitability and economic growth.

With help from the big nasty insurance company, they decided that the solution was not to cure the sick – or even to prevent their sickness in the first place – but to convince them that work is therapeutic, aids recovery and is the best form of rehabilitation. In other words, bollocks*. This way, with the help of the big nasty company’s bollocks* tests and adjudicators who based their decisions on bollocks*, they could say the problem was with the person who had the illness. Their behaviour and beliefs became the focus of the government’s moral judgement and action. If they did not change their ways, then sanctions would be used as a “motivational tool” – and people would be starved back into work.

And that, dear child, has continued to this very day! People claiming sickness or disability benefits in the small country, which is called the United Kingdom, have to take a test in which medical evidence plays a tiny role, run by people who are not doctors and judged by people who are not doctors. Many of these decisions have been found to be unfair, and have often been found to have failed to evaluate claimants’ conditions in their totality – which is why people with terminal cancer have been found fit for work. Many claims have been found to need re-examination.

You can see the hand of the big nasty insurance company at work, can’t you!

That is because the big nasty insurance company, which is called Unum, has been at the heart of the small country’s government ever since it was first invited in. And they intend to live happily ever after, at the public’s expense.

“A lot of people think that disabled people don’t have sex, but this is not true, because the government are screwing us hard.” Francesca Martinez, The News Quiz, BBC Radio 4, January 11, 2013.

*I should apologise for the fault in my computer. Every time I try to type – I’ll just cut and paste it in here – “the biopsychosocial model” or any combination of those words, it comes out “bollocks”. Sorry!

**Peter Lilley

***John LoCascio

****Frank Field

*****Tony Blair