Tag Archives: Tessa Nejranowski

The ‘diabetes tax’: Some patients must pay £1,200 a year for tool Theresa May said was freely available on the NHS

Theresa May: She might get her FreeStyleLibre diabetes tool on the NHS, but her government has made sure many members of the public have to pay a fortune for it.

An apparently innocent interlude in Prime Minister’s Questions has opened up a potentially-huge controversy for the Conservative government.

Labour MP Steve McCabe noted that Theresa May uses a FreeStyleLibre diabetes tool, which monitors her condition and warns her when she needs medication. He asked when it would be freely available on the National Health Service. Here’s the dialogue, from the official record of Parliamentary affairs, Hansard:

Steve McCabe (Birmingham, Selly Oak) (Lab)

“Even the Prime Minister’s fiercest critics—I believe she has a few—must be full of admiration for the way in which she manages her diabetic condition and holds down such a tough and demanding job. I understand that she benefits from a FreeStyle Libre glucose monitoring system. Wouldn’t it be nice if she did something to make that benefit available to the half a million people who are denied it because of NHS rationing? Perhaps we could call it “help for the many, not the few”. [907106]

“I thank the hon. Gentleman for his comments. I do use a FreeStyle Libre, and it is now available on the national health service, but it is not the only means of continuous glucose monitoring that is available on the NHS. Yesterday I saw a letter from a child—a young girl—who had started on the FreeStyle Libre, but, because of the hypos that she had been having, had been moved to a different glucose monitoring system. There is no one system that is right for everyone; what is important is that those systems are now available on the NHS.”

Technically, she was correct and the FreeStyleLibre is available on the NHS.

But, thanks to Tory meddling, its availability to people with diabetes is based on a postcode lottery.

You may remember that Andrew Lansley’s hated Health and Social Care Act of 2012 imposed Clinical Commissioning Groups on the NHS. These are local organisations that decide which services should be available to patients in their areas, based on the amount of money that is made available to them. The creation of CCGs was justified with a claim that GPs would serve on them – but in fact GPs are far too busy and the work seems to have devolved to businesspeople.

Unite the Union surveyed the 3,392 CCG board members in 2015 and reported that 513 were directors of private healthcare companies: 140 owned such businesses and 105 carried out external work for them. More than 400 CCG board members were shareholders in such companies.

As a result, trust in CCGs’ ability, or indeed willingness, to provide the best-quality healthcare their budgets can afford is low. It seems the bias is more likely towards offering private firms the contracts they want, in order to appease shareholders who sit on these groups.

The FreeStyleLibre – together with those who use it – appears to be a victim of this system.

While it is nominally available on the NHS, as Mrs May claimed, it is not available to huge numbers of NHS patients because the CCGs in their area simply haven’t offered to pay for it. Instead, they have to fund it themselves at a cost of £100 per month.

That’s a “Diabetes Tax”, if you like, of £1,200 per year.

This information comes from a segment of the BBC’s Politics Live that I was lucky enough to notice:

Here’s the clip the programme put up on Twitter, in which Type 1 diabetic Tessa Nejranowski destroys Mrs May’s claim:

So there you have it:

Mrs May lied to Parliament. FreeStyleLibre is not available on the NHS – at least, not everywhere in England – and where it is not, people have to pay £1,200 a year to have it privately. That’s a “diabetes tax” imposed on people with the condition by the Conservatives.

And it’s about as strong an argument as any for the dissolution of the CCGs and the repeal of the Health and Social Care Act 2012. But you’ll have to wait for a Labour government before that happens.

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