Stephen Hawking has Motor Neurone Disease and is able to work – but many other people with the condition need help, and it seems the government is not good at providing it.

Those of you with other conditions – or who know people with other conditions – who’ve had trouble getting PIP may be asking what’s so important about people with Motor Neurone Disease (MND).

Let’s consider this in a more holistic way.

Yes, the inquiry is into access to PIP for people with MND – it has been launched by the All-Party Parliamentary Group on MND, not by a group focusing on PIP in general.

But the findings may refer to people with many conditions, not just MND.

Depending on what they are, they may encourage other groups to launch further inquiries, pool resources, and then ask some really hard questions about PIP assessments in general.

If they do, it won’t come a moment too soon.

The All-Party Parliamentary Group (APPG) on MND has launched an inquiry into access to Personal Independence Payment (PIP) for people with MND.

There is evidence that people with MND can find it hard to access PIP in a timely way and an estimated 800 people with MND are currently waiting to be moved from Disability Living Allowance (DLA) to PIP.

To support this inquiry, MPs are asking people living with MND to share any problems they have experienced when claiming PIP. The APPG will use this information to make recommendations to Government and others about how the system can be improved.

MPs would like to hear from the following people:

  • People with MND who are currently claiming Disability Living Allowance (DLA)
  • People with MND who have been moved from DLA to PIP
  • People with MND who have been awarded PIP, including those who claimed under the Special Rules for Terminal Illness (SRTI)3
  • People with MND who are in the process of making a claim for PIP

Source: MPs launch inquiry into access to PIP for people with MND | MND Association

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