Abrahams demands £2.4 billion dementia fund to help bridge social care gap
Debbie Abrahams: Campaigning for people with dementia – and for improved social care all round.
My own grandmother had dementia. The family looked after her – but many people don’t have that kind of support.
Ms Abrahams said: “Typically, people with dementia spend £100,000 on their care, an astronomical sum, which would take 125 years to save for, well over a lifetime.
“Social care is in a desperate state and in urgent need of a complete overhaul. People with dementia are left struggling with a system that is unfair and unsustainable.
“The injustice of people battling to get care, on top of battling the devastating effects of dementia can’t go on and the Government must act quickly.”
It is more than an injustice. It is uncivilised.
But Tories like to pretend they are civilised. Let’s see what they do about this.
MP Debbie Abrahams has backed a call for a new £2.4 billion dementia fund by tabling a cross-party parliamentary early day motion (EDM).
The Oldham East and Saddleworth MP is co-chair of the all-party parliamentary group (APPG)on dementia.
This follows an Alzheimer’s Society report calling for urgent investment and arguing that people with dementia face an average 15 per cent higher social care costs than others
The EDM calls on the government to include a dementia fund in the forthcoming spending review to break the deadlock on reforming the social care system and end the unfairness facing people with dementia.
Source: MP Debbie Abrahams calling for £2.4 billion dementia fund | The Oldham Times
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My wife died from Alzheimer’s/dementia. She was ill for around 4 years, but thanks to a team of specialist NHS nurses, I was able to keep her at home until she had a fall which hospitalised her for the last 9 weeks of her life. I was fortunate in that a few sparks of my wife’s old self were never quite extinguished. However, she had prolonged bouts of paranoia and violence towards me which made life difficult, but, thanks to NHS support, things could have been worse. The lesson for me was not to take any of her actions personally – tactic not as easy as it sounds.
£100,000 for dementia care? So far my mum has paid £80,000 for two years care in a Nursing Home and that is with a discount because social worker, mental health team & ourselves agreed that care was ‘unsustainable’ at home. Nursing care was then urgently sought by the local authority.
Mum 80 later this year, has mixed dementia suffers colitis (60 years), COPD, is fully mobile, doubly incontinent, has daily hallucinations (3 years) & challenging behaviour in which she has hurt staff & residents. Mum also has to be fed as she does not recognise every day objects and their purpose . All her needs are met by the Nursing Home.
The NHS so far have rejected our claim twice for funding saying mums needs are social care needs. We’ve been fighting 2 years for NHS Continuing HealthCare Funding & last year instructed solicitors costing £13,000. The solicitors believe we have a very strong case and now we await on an Indepedent Review Panel by NHS England.
Message to carer’s, don’t give up & check out the CareToBeDifferent website which has loads of information if you don’t know where to start. Also remember that even if your loved one with dementia has died you can still start a claim for NHS Continuing HealthCare Funding but you will probably have to instruct solicitor’s to do this for you on a no win, no fee basis. There are many solicitor’s that deal solely with NHS Continuing HealthCare Claims. Good luck!
ah the d word affects many even me but I was very very lucky I got the help and was put on tablets which brought back some of me not all but I count myself very lucky has many can’t have the tablets for d I
My mother has dementia and has had to go into a home as she can’t walk, has to be lifted on and off the toilet etc. It’s costing over £800 a week. Her pensions and the rent on her bungalow don’t even cover half of this. My Mum and Dad worked all their lives, never claimed anything, bought their own home, and paid it off so that they would have something to leave to my sister and I. The amount of debt being run up this might not now happen.If it was anything else but dementia the state would pay. There should at least be a cap on care fees, it’s really not fair that all they worked for is being spent on care for her.