This is a sequel. Last October, Vox Political published Living under the threat of welfare reform, a personal account of the hardships suffered by just one disabled benefit claimant as a result of the Coalition government’s crude and unnecessary attacks on people who are unable to work and must rely on social security. The author expressed fears about her future, after the main changes to benefits that were expected in April this year. Vox Political contacted her earlier this week to find out how she was coping, and this article is the result. Please welcome Sasson Hann:
Definition of ‘welfare’: the good fortune, health, happiness prosperity, etc., of a person, group, or organisation; well-being: to look after a child’s welfare; the physical or moral welfare of society.
When I first read ‘21st Century Welfare‘ published in the summer of 2010, 10 months after I was forced to give up my professional career, I realised that those of us reliant on benefits were facing an almost insurmountable challenge to their well-being: a challenge like nothing before in recent history.
At the time, I spoke to friends about the possible consequences of welfare reform, then subsequently became distraught and angry when hearing that people had died after having benefits reduced or removed; sadly, now a weekly occurrence. So when Vox Political asked me to write a guest blog – an update of my personal circumstances – in all honesty, I felt that my situation was nothing in comparison: it’s challenging nonetheless.
The collective mindset towards people who claim benefits has definitely changed since 2010. ‘Hate crimes’ are in the news; hateful comments under articles in online newspapers. In fact a new term coined by researchers for this change – particularly toward benefit claimants – is ‘infrahumanism‘; people viewed as ‘less’ than human. Colin Brewer, the disgraced former Cornish councillor who was forced to resign after making derogatory comments about disabled children is an extreme example of this. Only yesterday he was reported as saying that society should treat disabled babies like farmers treat deformed lambs: the police are investigating. What concerns me more is why a community recently voted him back into office: what does this indicate?
Attitudes have certainly altered towards me, though not as drastically. Strangers think that they have the right to walk up to me and demand: ”What’s wrong with your legs then?’ People think it’s fair that the government should force me from my home of 27 years. Others cast doubt on my integrity, not believing that I’m too disabled to work. Some repeatedly ask me to explain why I receive certain levels of care and benefits, even why I should need a wheelchair outside: not indicative of ‘infrahumanism’ exactly, but definitely insensitive. Of all the pressures a disabled person faces, frequently having to justify your disability is one of the hardest challenges.
As for financial matters, my income has dropped drastically since 2010. I receive DLA and I’m in the ESA support group; a half decent income. That was until 2 years ago when my local authority started charging me for my care – some £3,000 per annum – despite me having no assets or savings. Nevertheless, I adjusted, and figured that unlike some, at least I had a ‘personalised’ care package.
Then I had a care reassessment last year. The assessor informed me that most of what my carers do was ‘no longer funded’. Basically, the new packages focus on eating and keeping a person clean: we do more for pets. I fought and gained a hollow victory: whilst I retained 75 per cent of the hours, social services dictated their use; I would also have to pay extra for private care. Ironically, in 2011, the government published a document about personalisation, but implemented the exact opposite. The reassessment commences again in July – another six months of stress compounded by the additional yearly financial and disability reassessments. I tell myself this is the ‘new normal’: I must rise to these challenges; not so easy when chronic illness dominates your life.
Beginning in April, I had the extra cost of a £100 per month bedroom tax (my housing association has nowhere for me to move to); along with the extra care costs, this totals £5,900 per annum. As a result, I can rarely socialise now, and it will take much longer to save to replace things. I reasoned that at least I have a home, enough money to pay bills, buy food, and the occasional treat. It’s unnerving though not having a financial buffer if my benefits are removed: a sobering thought. I have a good network of family and friends to help me, but ultimately, like others, they can’t afford to keep me financially long term; is it any wonder that some feel they cannot carry on, that there is no way out?
Multiply what I’ve lost by thousands of households in my area and country-wide, and imagine just how much money is being taken out of the local/national economy; how damaging this will become. In Wales for instance, due to historical poverty, the cuts to benefits have affected one in three people, such that the Welsh Assembly have recently appointed the first ‘Poverty Minister‘, claiming that austerity will cause hardship not known since the 1930’s.
When the Conservatives were last in power in the 80s, they scrapped housing benefit for the low-paid, water was privatised, and the Poll Tax was introduced. It had a dire affect on my family: we couldn’t afford heating so we suffered painful chilblains and contracted continual chest infections; without heating, the flat developed inch thick black mould on the walls; we couldn’t dry our clothes properly so they smelled of mildew; we were lucky if we could afford one meal a day; after a number of years our clothes and shoes wore out; we regularly had to go without soap, washing powder, loo roll, personal hygiene products and the like. It was a dark and miserable time for us.
I cannot begin to describe what it is like to have your dignity stripped away like this; I never thought I would see such hard times again: I was sadly mistaken. The current cuts to services and benefits go much further than this, leaving people with no safety net and no access to legal services. Incredulously, it isn’t even saving the government much money.
The government say we can’t afford the welfare bill, but regular readers of Vox Political will know there is in fact plenty of money sloshing around. The moving of public money into private hands, and also into the pockets of MPs and Lords: money that should be used to stimulate growth and improve the lives of all. If the post war government had enough money to set up the NHS, the welfare state, and embark on a massive building programme – when they were in a far worse financial situation – then our government can do the same. Yet laughably, MPs were this week lambasting the BBC because of the ‘excessive’ £24,000 average payment made to staff who moved to Salford, when MPs claim far more in expenses every year. On the other end of the scale, the ‘stock’ – as the government like to call us – who suffer and die for the sake of a few pounds a week are collateral damage; acceptable losses like deformed lambs. And if those who are left cannot afford a home and food, so what? A nightmarish ‘survival of the fittest’ scenario.
I can’t do much to oppose this; I’m too ill to attend protests. Occasionally I help people claim benefits and appeal, apply to charities, look up information and advise them, write and print a CV, and I’ve even negotiated with bailiffs! I tell everyone I meet about how welfare reform is affecting people, and I write as much as I’m able. This is all some of us can do; facing each challenge and fighting each battle, one by one. Notwithstanding this human catastrophe, I remain sanguine: I love life and I will not despair.
Martin Luther King Jr said: “The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge.” The government’s answer to that ‘challenge’ is to make the poorest destitute, the opposite to the definition of ‘welfare’: in this we perceive their ‘measure’. Consequently, we ‘infrahumans’ are facing a challenge so great that it will be remembered in history: are you up to this challenge? For all of the people who aren’t; for the many families who have lost loved ones: those of us left have to be.
Sasson Hann May 13, 2013.